A descriptive study of policy and system-level interventions to address cancer survivorship issues across six United States health systems

Martha Quinn, Nathan Wright, Marylee Scherdt, Debra L. Barton, Marita Titler, Julie S. Armin, Michelle J. Naughton, Jennifer Wenzel, Sanja Percac-Lima, Pooja Mishra, Sankirtana M. Danner, Christopher R. Friese

Research output: Contribution to journalArticlepeer-review

Abstract

Purpose: To describe policy and system-level interventions with potential to improve cancer care at six sites. Methods: In 2016, six institutions received foundation support to develop unique multi-component interventions aimed at improving cancer care for underserved populations. These organizations, located across the United States, participated in a cross-site evaluation to assess the overall initiative impact and to identify potentially promising policy and system-level solutions for dissemination and broader implementation. A health system and policy tracking tool was developed to collect data from each site and included a description of their efforts, strategies employed, and changes achieved (e.g., new policies, clinical protocols). Tracking tool data were analyzed using rapid qualitative analyses and a matrix approach. Semi-structured interviews were conducted with site leaders (N = 65) and were analyzed by thematic analysis. Results: Sites reported 20 system and policy efforts, which resulted in improvements to electronic health records and telehealth strategies, changes to hospital/health system policies, and standardized clinical protocols/guidelines, among others. Efforts were aimed at: (1) coordinating care across multiple providers, supported by patient navigators; (2) expanding psychosocial and supportive care; (3) improving patient-provider communication; and (4) addressing barriers to accessing care. Interview analyses provided insights into successful strategies, challenges, and implications of the COVID-19 pandemic on cancer care. Conclusions and implications for cancer survivors: Despite advances in diagnosis and treatment, cancer care remains inequitable. System-level improvements aimed at eliminating common barriers faced by underserved populations offer opportunities to improve the delivery of equitable, effective, and efficient care.

Original languageEnglish
Pages (from-to)2022-2032
Number of pages11
JournalJournal of Cancer Survivorship
Volume18
Issue number6
DOIs
StatePublished - Dec 2024

Keywords

  • Cancer care
  • Care coordination
  • Health equity
  • Patient-centered care
  • Survivorship care
  • System-level interventions

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