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A descriptive study of policy and system-level interventions to address cancer survivorship issues across six United States health systems

  • Martha Quinn
  • , Nathan Wright
  • , Marylee Scherdt
  • , Debra L. Barton
  • , Marita Titler
  • , Julie S. Armin
  • , Michelle J. Naughton
  • , Jennifer Wenzel
  • , Sanja Percac-Lima
  • , Pooja Mishra
  • , Sankirtana M. Danner
  • , Christopher R. Friese

Research output: Contribution to journalArticlepeer-review

Abstract

Purpose: To describe policy and system-level interventions with potential to improve cancer care at six sites. Methods: In 2016, six institutions received foundation support to develop unique multi-component interventions aimed at improving cancer care for underserved populations. These organizations, located across the United States, participated in a cross-site evaluation to assess the overall initiative impact and to identify potentially promising policy and system-level solutions for dissemination and broader implementation. A health system and policy tracking tool was developed to collect data from each site and included a description of their efforts, strategies employed, and changes achieved (e.g., new policies, clinical protocols). Tracking tool data were analyzed using rapid qualitative analyses and a matrix approach. Semi-structured interviews were conducted with site leaders (N = 65) and were analyzed by thematic analysis. Results: Sites reported 20 system and policy efforts, which resulted in improvements to electronic health records and telehealth strategies, changes to hospital/health system policies, and standardized clinical protocols/guidelines, among others. Efforts were aimed at: (1) coordinating care across multiple providers, supported by patient navigators; (2) expanding psychosocial and supportive care; (3) improving patient-provider communication; and (4) addressing barriers to accessing care. Interview analyses provided insights into successful strategies, challenges, and implications of the COVID-19 pandemic on cancer care. Conclusions and implications for cancer survivors: Despite advances in diagnosis and treatment, cancer care remains inequitable. System-level improvements aimed at eliminating common barriers faced by underserved populations offer opportunities to improve the delivery of equitable, effective, and efficient care.

Original languageEnglish
Pages (from-to)2022-2032
Number of pages11
JournalJournal of Cancer Survivorship
Volume18
Issue number6
DOIs
StatePublished - Dec 2024

Keywords

  • Cancer care
  • Care coordination
  • Health equity
  • Patient-centered care
  • Survivorship care
  • System-level interventions

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