Childhood cancer data initiative: Status report

Subhashini Jagu; Elaine R. Mardis; Mary F. Wedekind; Brigitte C. Widemann; Rena K. Kingery; Samantha L. Gonzalez; Jack F. Shern; Gregory H. Reaman

doi:10.1002/pbc.30745

Childhood cancer data initiative: Status report

Subhashini Jagu, Elaine R. Mardis, Mary F. Wedekind, Brigitte C. Widemann, Rena K. Kingery, Samantha L. Gonzalez, Jack F. Shern, Gregory H. Reaman

Research output: Contribution to journal › Article › peer-review

1 Scopus citations

Abstract

In March 2023, over 800 researchers, clinicians, patients, survivors, and advocates from the pediatric oncology community met to discuss the progress of the National Cancer Institute's Childhood Cancer Data Initiative. We present here the status of the initiative's efforts in building its data ecosystem and updates on key programs, especially the Molecular Characterization Initiative and the planned Coordinated National Initiative for Rare Cancers in Children and Young Adults. These activities aim to improve access to childhood cancer data, foster collaborations, facilitate integrative data analysis, and expand access to molecular characterization, ultimately leading to the development of innovative therapeutic approaches.

Original language	English
Article number	e30745
Journal	Pediatric Blood and Cancer
Volume	71
Issue number	2
DOIs	https://doi.org/10.1002/pbc.30745
State	Published - Feb 2024

Keywords

Childhood Cancer Data Catalog
Molecular Characterization Initiative
data accessibility
data harmonization
data integration
data sharing

Access to Document

10.1002/pbc.30745

Cite this

@article{f280267c6bac4cc6baf924cd10fdced5,

title = "Childhood cancer data initiative: Status report",

abstract = "In March 2023, over 800 researchers, clinicians, patients, survivors, and advocates from the pediatric oncology community met to discuss the progress of the National Cancer Institute's Childhood Cancer Data Initiative. We present here the status of the initiative's efforts in building its data ecosystem and updates on key programs, especially the Molecular Characterization Initiative and the planned Coordinated National Initiative for Rare Cancers in Children and Young Adults. These activities aim to improve access to childhood cancer data, foster collaborations, facilitate integrative data analysis, and expand access to molecular characterization, ultimately leading to the development of innovative therapeutic approaches.",

keywords = "Childhood Cancer Data Catalog, Molecular Characterization Initiative, data accessibility, data harmonization, data integration, data sharing",

author = "Subhashini Jagu and Mardis, {Elaine R.} and Wedekind, {Mary F.} and Widemann, {Brigitte C.} and Kingery, {Rena K.} and Gonzalez, {Samantha L.} and Shern, {Jack F.} and Reaman, {Gregory H.}",

note = "Publisher Copyright: {\textcopyright} 2023 Wiley Periodicals LLC. This article has been contributed to by U.S. Government employees and their work is in the public domain in the USA.",

year = "2024",

month = feb,

doi = "10.1002/pbc.30745",

language = "English",

volume = "71",

journal = "Pediatric Blood and Cancer",

issn = "1545-5009",

number = "2",

}

TY - JOUR

T1 - Childhood cancer data initiative

T2 - Status report

AU - Jagu, Subhashini

AU - Mardis, Elaine R.

AU - Wedekind, Mary F.

AU - Widemann, Brigitte C.

AU - Kingery, Rena K.

AU - Gonzalez, Samantha L.

AU - Shern, Jack F.

AU - Reaman, Gregory H.

PY - 2024/2

Y1 - 2024/2

N2 - In March 2023, over 800 researchers, clinicians, patients, survivors, and advocates from the pediatric oncology community met to discuss the progress of the National Cancer Institute's Childhood Cancer Data Initiative. We present here the status of the initiative's efforts in building its data ecosystem and updates on key programs, especially the Molecular Characterization Initiative and the planned Coordinated National Initiative for Rare Cancers in Children and Young Adults. These activities aim to improve access to childhood cancer data, foster collaborations, facilitate integrative data analysis, and expand access to molecular characterization, ultimately leading to the development of innovative therapeutic approaches.

AB - In March 2023, over 800 researchers, clinicians, patients, survivors, and advocates from the pediatric oncology community met to discuss the progress of the National Cancer Institute's Childhood Cancer Data Initiative. We present here the status of the initiative's efforts in building its data ecosystem and updates on key programs, especially the Molecular Characterization Initiative and the planned Coordinated National Initiative for Rare Cancers in Children and Young Adults. These activities aim to improve access to childhood cancer data, foster collaborations, facilitate integrative data analysis, and expand access to molecular characterization, ultimately leading to the development of innovative therapeutic approaches.

KW - Childhood Cancer Data Catalog

KW - Molecular Characterization Initiative

KW - data accessibility

KW - data harmonization

KW - data integration

KW - data sharing

UR - http://www.scopus.com/inward/record.url?scp=85174949145&partnerID=8YFLogxK

U2 - 10.1002/pbc.30745

DO - 10.1002/pbc.30745

M3 - Article

C2 - 37889049

AN - SCOPUS:85174949145

SN - 1545-5009

VL - 71

JO - Pediatric Blood and Cancer

JF - Pediatric Blood and Cancer

IS - 2

M1 - e30745

ER -

Childhood cancer data initiative: Status report

Abstract

Keywords

Access to Document

Other files and links

Fingerprint

Cite this